When Light Hurts

*trigger warnings regarding chronic conditions, including particularly serious ones



I recognise

Sensory disturbance,

I’m calmer knowing what it is;

My brain


On fire,


For full diagnosis

Thinking of Dad’s aneurisms,



My sight blurs

I am fire and ice

Pressures rise

Behind eyes;

I had brain damage at birth,

Now even light hurts,


Fragile, disconnect

Nana’s glass eye in water

Bobs up in my mind,


I ponder

How her mother died

Far too young

Leaving infants,

Did they have Elhers Danlos?

Is mine vascular?


Five more months to wait

Until I have the answer,

Vascular is rare

But when migraines steal my sight

It shifts perspectives


Into darker thoughts

When the light no longer hurts,

I glimpse hope’s return.


Antonia Sara Zenkevitch

adult alone backlit black and white
Photo by Pixabay on Pexels.com




  1. V.J. Knutson says:

    It’s difficult not to let that fear overtake us. You have written of it so well.

    1. antoniazen says:

      Thank you. 💜

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