…life; potential; vitality,
such strength for the able-bodied,
I choose a bolder path you see,
or perhaps ‘choice’ was eroded
by kinks in my neurology
and the way my cells encoded
in ‘abnormal’ biology; …
Tag: Elhers Danlos Syndrome
The Good, The Bad, the Ugly
Hello All, Apologies for not posting in quite a while. This is the good, the bad and the ugly and the hopeful reasons why. As many of you who follow this blog will know, I have to battle a complex mix of disabilities and health challenges. Early this year I gained two more diagnoses, for…
Zebra Unicorn
Alternative Text: a zebra unicorn stands on clover grass under a starry night sky full of shooting stars Unicorn Zebra rarest of the rare, horses say we don’t exist, seek us where we roam. Antonia Sara Zenkevitch
Self-Sustaining
To sustain the self Is fraught with complexities, I remain alive. Hello All, I hope you have enjoyed your Sunday! I’ve not been physically or mentally able to write or blog post this last fortnight. I won’t bore you with all the details but it is due to a domino effect of connected flare-ups…
When Light Hurts
*trigger warnings regarding chronic conditions, including particularly serious ones Migraine I recognise Sensory disturbance, I’m calmer knowing what it is; My brain On fire, Waiting For full diagnosis Thinking of Dad’s aneurisms, Anxious, My sight blurs I am fire and ice Pressures rise Behind eyes; I had brain damage at birth, Now…