Hello All, Apologies for not posting in quite a while. This is the good, the bad and the ugly and the hopeful reasons why. As many of you who follow this blog will know, I have to battle a complex mix of disabilities and health challenges. Early this year I gained two more diagnoses, for…
Alternative Text: a zebra unicorn stands on clover grass under a starry night sky full of shooting stars Unicorn Zebra rarest of the rare, horses say we don’t exist, seek us where we roam. Antonia Sara Zenkevitch
losing words and dates again, I laugh when I have trouble with a form but part of me is frightened, my neurology is not the norm, never was, but this dense fog is getting deeper; first I cannot read as I lose focus, my thoughts loop, as I infer what I inferred before before…
You may not see our battle scars,
but know this; we are not victims
we are this world’s warriors.
cardiology; ‘an abnormality of the functioning of the autonomic (involuntary) nervous system,’ another one; a condition common with my co-morbidities, nothing I’d not guessed we already do much of what they say I should, I laugh during the tests; “Don’t get up too fast,” he says smiling knowingly – as if I could, and we…
My favourite quotes have long included “Do not fear death, fear the inadequate life.” Long the unanswerable question that lurks on the edges started roaring loudly.
Lost focus; Thoughts are flighty friends, Loneliness Born within The absent I escaping All navigation. Antonia Sara Zenkevitch
*trigger warnings regarding chronic conditions, including particularly serious ones Migraine I recognise Sensory disturbance, I’m calmer knowing what it is; My brain On fire, Waiting For full diagnosis Thinking of Dad’s aneurisms, Anxious, My sight blurs I am fire and ice Pressures rise Behind eyes; I had brain damage at birth, Now…
They’re kind words, true; difficult times never last forever, this news, not hers, only mine inclined ‘til the bow; I won’t be OK; incurable, I’ll dazzle like a wave, breaking. Antonia Sara Zenkevitch With Thanks for Colleen Cheesbro’s Tanka Tuesday prompt, this week the words were trouble and game and I chose…
There are stripes
My pale skin,
Where the matter of me is stretched thin
Light and dark matter between
Each cell’s loose connections,
Each day my stripes go unseen
By those whose fear casts reflections;
Projections of who they fear themselves to be
As they try to warp and bend my sense of identity,
But their fear is not me.