The Bend

…life; potential; vitality,
such strength for the able-bodied,
I choose a bolder path you see,
or perhaps ‘choice’ was eroded
by kinks in my neurology
and the way my cells encoded
in ‘abnormal’ biology; …

The Good, The Bad, the Ugly

Hello All, Apologies for not posting in quite a while. This is the good, the bad and the ugly and the hopeful reasons why. As many of you who follow this blog will know, I have to battle a complex mix of disabilities and health challenges. Early this year I gained two more diagnoses, for…

Zebra Unicorn

Alternative Text: a zebra unicorn stands on clover grass under a starry night sky full of shooting stars   Unicorn Zebra rarest of the rare, horses say we don’t exist, seek us where we roam.   Antonia Sara Zenkevitch

In black and white

You may not see our battle scars,

but know this; we are not victims

we are this world’s warriors.

Heart

cardiology; ‘an abnormality of the functioning of the autonomic (involuntary) nervous system,’ another one; a condition common with my co-morbidities, nothing I’d not guessed we already do much of what they say I should, I laugh during the tests; “Don’t get up too fast,” he says smiling knowingly – as if I could, and we…

When Light Hurts

*trigger warnings regarding chronic conditions, including particularly serious ones   Migraine I recognise Sensory disturbance, I’m calmer knowing what it is; My brain   On fire, Waiting For full diagnosis Thinking of Dad’s aneurisms, Anxious,   My sight blurs I am fire and ice Pressures rise Behind eyes; I had brain damage at birth, Now…

I am Zebra

There are stripes

Hidden within

My pale skin,

Zebra stripes

Where the matter of me is stretched thin

Light and dark matter between

Each cell’s loose connections,

Each day my stripes go unseen

By those whose fear casts reflections;

Projections of who they fear themselves to be

As they try to warp and bend my sense of identity,

But their fear is not me.

Clay and Sparks

Labyrinthine
Body carved of clay
Sparks within
Visioning
A way through this unknowing
Luminescent maze.

Antonia Sara Zenkevitch

Dark Matter

it bends my light;

stretches me

as universe implodes

slowly