…life; potential; vitality,
such strength for the able-bodied,
I choose a bolder path you see,
or perhaps ‘choice’ was eroded
by kinks in my neurology
and the way my cells encoded
in ‘abnormal’ biology; …
Tag: EDS
The Good, The Bad, the Ugly
Hello All, Apologies for not posting in quite a while. This is the good, the bad and the ugly and the hopeful reasons why. As many of you who follow this blog will know, I have to battle a complex mix of disabilities and health challenges. Early this year I gained two more diagnoses, for…
Zebra Unicorn
Alternative Text: a zebra unicorn stands on clover grass under a starry night sky full of shooting stars Unicorn Zebra rarest of the rare, horses say we don’t exist, seek us where we roam. Antonia Sara Zenkevitch
In black and white
You may not see our battle scars,
but know this; we are not victims
we are this world’s warriors.
Heart
cardiology; ‘an abnormality of the functioning of the autonomic (involuntary) nervous system,’ another one; a condition common with my co-morbidities, nothing I’d not guessed we already do much of what they say I should, I laugh during the tests; “Don’t get up too fast,” he says smiling knowingly – as if I could, and we…
When Light Hurts
*trigger warnings regarding chronic conditions, including particularly serious ones Migraine I recognise Sensory disturbance, I’m calmer knowing what it is; My brain On fire, Waiting For full diagnosis Thinking of Dad’s aneurisms, Anxious, My sight blurs I am fire and ice Pressures rise Behind eyes; I had brain damage at birth, Now…
I am Zebra
There are stripes
Hidden within
My pale skin,
Zebra stripes
Where the matter of me is stretched thin
Light and dark matter between
Each cell’s loose connections,
Each day my stripes go unseen
By those whose fear casts reflections;
Projections of who they fear themselves to be
As they try to warp and bend my sense of identity,
But their fear is not me.
Clay and Sparks
Labyrinthine
Body carved of clay
Sparks within
Visioning
A way through this unknowing
Luminescent maze.
Antonia Sara Zenkevitch
Dark Matter
it bends my light;
stretches me
as universe implodes
slowly
