once, I would have scaled it, that guardian stone of hidden realms, mountain giants could just lift it, yet I’d be faster than most elves; with wolf’s heart and unbalanced feet, though many times I tripped and fell, I’d battle boundaries few could see; my barriers invisible, I’d climb after I tumbled, I carried on…
Tag: cerebral palsy
The Bend
…life; potential; vitality,
such strength for the able-bodied,
I choose a bolder path you see,
or perhaps ‘choice’ was eroded
by kinks in my neurology
and the way my cells encoded
in ‘abnormal’ biology; …
Self-Sustaining
To sustain the self Is fraught with complexities, I remain alive. Hello All, I hope you have enjoyed your Sunday! I’ve not been physically or mentally able to write or blog post this last fortnight. I won’t bore you with all the details but it is due to a domino effect of connected flare-ups…
When Light Hurts
*trigger warnings regarding chronic conditions, including particularly serious ones Migraine I recognise Sensory disturbance, I’m calmer knowing what it is; My brain On fire, Waiting For full diagnosis Thinking of Dad’s aneurisms, Anxious, My sight blurs I am fire and ice Pressures rise Behind eyes; I had brain damage at birth, Now…
I am Zebra
There are stripes
Hidden within
My pale skin,
Zebra stripes
Where the matter of me is stretched thin
Light and dark matter between
Each cell’s loose connections,
Each day my stripes go unseen
By those whose fear casts reflections;
Projections of who they fear themselves to be
As they try to warp and bend my sense of identity,
But their fear is not me.
Diagnosis 07/02/19
(*this post is about living the diagnostic process of a serious chronic illness and may contain triggers) They have to rule out worse alternatives But it’s almost definite, As geneticists speak of neurologists Physiotherapists, cardiologists And, if they deign to see me, Rheumatologists, There’s a remote possibility Of the one specialist Rehabilitation place in…
